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  1. Diwi9
    Post

    Michael VanElzakker

    I believe that they may also be linked with OMF. He is listed as part of their ME/CFS Collaborative Research Center at Harvard Team:...
    Post by: Diwi9, Dec 28, 2018 in forum: ME/CFS research news
  2. Diwi9
    Post

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    Something similar happened in the Seattle area a few years back, some viral infection affecting children neurologically that was equated to polio.
    Post by: Diwi9, Oct 7, 2018 in forum: Other health news and research
  3. Diwi9
    Post

    Petition: Per Fink Should Not Spread Lies about ME at Columbia University!

    Not just a liar, his actions have been criminal. He uses his soft-science to harm pwME and their families. An institution like Columbia...
    Post by: Diwi9, Oct 6, 2018 in forum: Petitions
  4. Diwi9
    Post

    Unraveling the Molecular Determinants of Manual Therapy: An Approach to Integrative Therapeutics for the Treatment of Fibromyalgia and CFS/ME

    I appreciate the explanation provided by the authors here: "Benefits from CBT/GET therapy have also been reported for CFS/ME patients by other CTs...
    Post by: Diwi9, Sep 9, 2018 in forum: ME/CFS research
  5. Diwi9
    Thread

    Discovery Forum 2017: Dr. Nancy Klimas

    I don't think this one has been posted. Dr. Klimas discusses her advances with Gulf War Illness and how she was able to use ME/CFS as a...
    Thread by: Diwi9, Aug 18, 2018, 8 replies, in forum: ME/CFS research news
  6. Diwi9
    Post

    The expression signature of very long non-coding RNA in myalgic encephalomyelitis/chronic fatigue syndrome, 2018, Chin-An Yang et al

    I hope this publication opens the door for more funding of Dr. Scheibenbogen's work.
    Post by: Diwi9, Aug 18, 2018 in forum: ME/CFS research
  7. Diwi9
    Post

    Netflix "Afflicted" - ME included

    I thought the series was terrible and sent the wrong message in terms of advocacy. The program consistently conflated psychological and...
    Post by: Diwi9, Aug 11, 2018 in forum: General ME/CFS news
  8. Diwi9
    Post

    What research do you want to see?

    1. Autopsies, looking at nervous system tissues. 2. Not sure how this would work, being able to monitor brain waves through out the course of a...
    Post by: Diwi9, Jul 7, 2018 in forum: General Advocacy Discussions
  9. Diwi9
    Post

    Stamina levels before ME/CFS?

    I don't think I ever had superior cognitive stamina. I would often need to take power naps while reading during law school and would have bad...
    Post by: Diwi9, Jul 7, 2018 in forum: General and other signs and symptoms
  10. Diwi9
    Post

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    Another example: [MEDIA]
    Post by: Diwi9, Jul 4, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Diwi9
    Post

    Are ME/CFS Patient Organizations “Militant”?, 2018, Blease and Geraghty

    I agree you here @ukxmrv as the "the medical establishment" (wish Geraghty had used "UK medical establishment") has taken on the dual position of...
    Post by: Diwi9, Jul 4, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Diwi9
    Post

    Resistance To Science and Technology by Julian Vigo (Forbes.com)

    I see a common strategy in her writing: find a maligned/stigmatized group, describe them as militant, discuss why they are and should be hated,...
    Post by: Diwi9, Jun 30, 2018 in forum: General ME/CFS news
  13. Diwi9
    Post

    A Girl Behind Dark Glasses - Jessica Taylor-Bearman

    I hope your publication helps inform NICE and future Parliamentary actions. Thank you sharing here at S4ME, @jayletay! I will be purchasing your...
    Post by: Diwi9, Jun 28, 2018 in forum: General ME/CFS news
  14. Diwi9
    Post

    CNN POTS article: “A doctor said it was all in her head“

    Good article and coverage. It's a pity that Lauren Stiles promoted exercise without caution seeing that a huge percentage of POTS patients have a...
    Post by: Diwi9, Jun 26, 2018 in forum: General ME/CFS news
  15. Diwi9
    Post

    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    That is what Cort is reporting on Health Rising.
    Post by: Diwi9, Jun 25, 2018 in forum: ME/CFS research news
  16. Diwi9
    Post

    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    Yes, the grant shows $775,000 for FY 2018-2019, but the project end date is 2023. So it's expected to refund each year for five years.
    Post by: Diwi9, Jun 25, 2018 in forum: ME/CFS research news
  17. Diwi9
    Post

    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    Someone clarified to me that it is $775,509 each year for 5 years.
    Post by: Diwi9, Jun 25, 2018 in forum: ME/CFS research news
  18. Diwi9
    Post

    Ron Davis: Grant award: Molecular and single-cell immunology in ME/CFS

    The entire funding is for 5 year, but couldn't we expect more than one paper out of this research...so that some information is published before...
    Post by: Diwi9, Jun 25, 2018 in forum: ME/CFS research news
  19. Diwi9
    Post

    Dysautonomia International Conference 2018 (Nashville, TN)

    Hopefully there will be some video. It sounds like many of the speakers have publications lined up, so that could be another reason. The...
    Post by: Diwi9, Jun 24, 2018 in forum: General ME/CFS news
  20. Diwi9
    Post

    Dysautonomia International Conference 2018 (Nashville, TN)

    Wow...that's a huge disappointment, they were so good in the past. Thank you, however, for the information!
    Post by: Diwi9, Jun 24, 2018 in forum: General ME/CFS news
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