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  1. Effi
    Post

    Open The Influence of Epigenetic Modifications and Post-Exertional Malaise in People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2021 Polli

    [Note: haven't posted in a long time, am cognitively not doing well, hope my writings make sense! will probably be unable to comment further, hope...
    Post by: Effi, Mar 5, 2021 in forum: Recruitment into current ME/CFS research studies
  2. Effi
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Hi @JemPD, don't worry about the control buttons being on the back of the ear cup, they're pretty sturdy so nothing happens when you rest back on...
    Post by: Effi, Mar 6, 2020 in forum: Hypersensitivity and Intolerance Reactions
  3. Effi
    Post

    Mindfulness-based therapy for psychogenic nonepileptic seizures, 2019, Baslet, Ehlert, Oser and Dworetzky

    I know someone who was diagnosed with "psychogenic nonepileptic seizures". I feel like it's the MUS category of epilepsy, created to dump in all...
    Post by: Effi, Nov 5, 2019 in forum: Other psychosomatic news and research
  4. Effi
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    @Squeezy I'm housebound so I haven't been to shops for years, but when someone in the house is listening to music or something on tv that has...
    Post by: Effi, Jul 23, 2019 in forum: Hypersensitivity and Intolerance Reactions
  5. Effi
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    @JemPD in my case, what bothers me the most are 1) loud noises and 2) a lot of different noises at the same time e.g. two conversations plus...
    Post by: Effi, Jul 20, 2019 in forum: Hypersensitivity and Intolerance Reactions
  6. Effi
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Bose seems to have a wordwide 30-day risk free trial ("return within 30 days for a full refund") on all their noise cancelling products (except...
    Post by: Effi, Jul 20, 2019 in forum: Hypersensitivity and Intolerance Reactions
  7. Effi
    Post

    The Hospital Anxiety and Depression Scale (HADS) - a discussion

    @Andy, did you mean Dr. Ungers CDC study? (published 2017) https://stacks.cdc.gov/view/cdc/47722 The figure that was shared a lot online was...
    Post by: Effi, Jul 19, 2019 in forum: Subjective outcome measures (questionnaires)
  8. Effi
    Post

    Europe: EUROMENE

    @MSEsperanza I share your concern. The Belgian member of EUROMENE, Mira Meeus, is also strongly BPS. (see @Michiel Tack's article about the...
    Post by: Effi, Aug 21, 2018 in forum: News from organisations
  9. Effi
    Post

    Central sensitisation theory - discussion thread

    @anniekim Central Sensitisation explains "everything". That is the "beauty" of the philosophy. (Can you see my ironic use of quotation marks?...
    Post by: Effi, Apr 14, 2018 in forum: Psychosomatic theories and treatments discussions
  10. Effi
    Post

    Dutch Health Council on ME/CFS tomorrow on national news

    Executive summary of the guidelines in English (translation by the Health Council itself, so I guess this is the official translation?)...
    Post by: Effi, Mar 19, 2018 in forum: General ME/CFS news
  11. Effi
    Post

    Update on Jarred Younger 'brain temperature' study

    Although I do believe Younger knows very well what ME is, he usually mentions 'fatigue' as the subject of his studies. His lab is called...
    Post by: Effi, Mar 5, 2018 in forum: ME/CFS research news
  12. Effi
    Post

    The economic burden of CFS/ME: an initial summary of the existing evidence and recommendations for further research (Brenna & Gitto, 2017)

    The "economic burden" argument is something that pops up in BPS research a lot. That is how they love to describe us, a huge burden on society,...
    Post by: Effi, Feb 18, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Effi
    Post

    I was diagnosed with a rare autoimmune disease called "Relapsing Polychondritis"

    Thank you for your reply @TrixieStix. :thumbup:
    Post by: Effi, Feb 17, 2018 in forum: Immune: Autoimmune and Mast Cell Disorders
  14. Effi
    Post

    I was diagnosed with a rare autoimmune disease called "Relapsing Polychondritis"

    @TrixieStix Maybe a bit of a personal question, but did you always somehow feel like you didn't 100% fit the ME criteria? The reason I'm asking is...
    Post by: Effi, Feb 16, 2018 in forum: Immune: Autoimmune and Mast Cell Disorders
  15. Effi
    Post

    You make me tired: An experimental test of the role of interpersonal operant conditioning in fatigue 2018 Bert Lenaert et al

    A list of his publications. o_O https://lirias.kuleuven.be/cv?u=U0073677
    Post by: Effi, Feb 8, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Effi
    Post

    Petition: Create a virtual school for children too unwell to attend school

    @Amw66 See my previous post! :)...
    Post by: Effi, Jan 21, 2018 in forum: Petitions
  17. Effi
    Post

    Petition: Create a virtual school for children too unwell to attend school

    That is what Bednet is in Belgium, it's part of the official educational system. Free of charge.
    Post by: Effi, Jan 21, 2018 in forum: Petitions
  18. Effi
    Post

    Japan Me Association: "Accolades for our Documentary Film"

    My wild guess is that this is the trailer. (Google Translate helped me figure it out.) Even though we don't understand what they're saying, I...
    Post by: Effi, Jan 21, 2018 in forum: Advocacy Projects and Campaigns
  19. Effi
    Post

    Petition: Create a virtual school for children too unwell to attend school

    Something like this has been around in Belgium for over ten years. It seems to be pretty successful. Children can follow classes in real time...
    Post by: Effi, Jan 21, 2018 in forum: Petitions
  20. Effi
    Post

    Unrest now on Netflix

    Available in Belgium, with Dutch/French/German subtitles.
    Post by: Effi, Jan 15, 2018 in forum: General ME/CFS news
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