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  1. Moosie
    Post

    David Tuller: Trial By Error: My Letter to Red Whale/GP Update

    Can't read much at the moment but is this the first time anyone involved in any of this hocus pocus has stated what 'recovery' means? (Bottom of...
    Post by: Moosie, Aug 23, 2018 in forum: General ME/CFS news
  2. Moosie
    Post

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    The letter from the 'leading experts' implies that the CBT used for ME patients is the same as is used for cancer and MS this is not true. How can...
    Post by: Moosie, May 15, 2018 in forum: General ME/CFS news
  3. Moosie
    Post

    The Times: Nobel scientist’s researcher finds humiliating error

    How refreshing.
    Post by: Moosie, Dec 18, 2017 in forum: Research methodology news and research
  4. Moosie
    Post

    Open Medicine Foundation (OMF) fundraising

    Fantastic @Cheesus !! Well done! And well done for following it up. :emoji_champagne:
    Post by: Moosie, Dec 16, 2017 in forum: Fundraising
  5. Moosie
    Post

    Open Medicine Foundation (OMF) fundraising

    Joined and upvoted. Well done @Adam pwme and great comment. Can't say I understand it . . . but I'm keeping my fingers crossed.
    Post by: Moosie, Dec 13, 2017 in forum: Fundraising
  6. Moosie
    Post

    NICE list of stakeholders for the ME/CFS Guidelines

    I think I probably down loaded it from the website - ie same place at the link above.
    Post by: Moosie, Dec 11, 2017 in forum: General ME/CFS news
  7. Moosie
    Post

    NICE list of stakeholders for the ME/CFS Guidelines

    Yes I presume so. I've had the first one - dated October 2017 - since 10th July 2017, which is a bit strange.
    Post by: Moosie, Dec 11, 2017 in forum: General ME/CFS news
  8. Moosie
    Post

    NICE list of stakeholders for the ME/CFS Guidelines

    Well i can’t tell from my saved info so I put the title into google and it brought up a link to a NICE web page -...
    Post by: Moosie, Dec 11, 2017 in forum: General ME/CFS news
  9. Moosie
    Post

    NICE list of stakeholders for the ME/CFS Guidelines

    Ok will try to work it out. I think I downloaded it around the time that the stakeholders comments was published. I'll see if I can narrow it down.
    Post by: Moosie, Dec 11, 2017 in forum: General ME/CFS news
  10. Moosie
    Post

    NICE list of stakeholders for the ME/CFS Guidelines

    I found this in my folder of things to look at when I can (big bloody folder). The only thing is I can't exactly remember where I got it. It says...
    Post by: Moosie, Dec 11, 2017 in forum: General ME/CFS news
  11. Moosie
    Post

    Interview with neuroscientist Michael VanElzakker: Vagus Nerve, ME/CFS, latent infection and more

    Only read the first section. What a hero. Crying my eyes out. Needed to hear something positive today. Haven't even reached the research yet -...
    Post by: Moosie, Dec 8, 2017 in forum: ME/CFS research news
  12. Moosie
    Post

    Forward Me Group Minutes - 31st October 2017

    I’ve just made a complete mess of commenting on the ME Facebook page about issues raised here. I feel bad that I didn’t give @Valentijn credit for...
    Post by: Moosie, Dec 5, 2017 in forum: General ME/CFS news
  13. Moosie
    Post

    Forward Me Group Minutes - 31st October 2017

    @Valentijn I’m afraid there are some comments from the Royal College of General Practitioners in the stakeholders consultation - bottom of page 89...
    Post by: Moosie, Dec 4, 2017 in forum: General ME/CFS news
  14. Moosie
    Post

    Forward Me Group Minutes - 31st October 2017

    A little further down - 2.17 Prof Malcolm Hooper drew Prof Baker’s attention to his paper on ME. Prof Baker said he had received it. Prof Hooper...
    Post by: Moosie, Dec 4, 2017 in forum: General ME/CFS news
  15. Moosie
    Thread

    Forward Me Group Minutes - 31st October 2017

    Link to minutes of meeting with Professor Mark Baker, Director of Guidelines, NICE http://www.forward-me.org.uk/31st%20October2017.htm
    Thread by: Moosie, Dec 4, 2017, 31 replies, in forum: General ME/CFS news
  16. Moosie
    Post

    New York Times: New Recognition for Chronic Fatigue

    Brilliant and clear comment by Graham McPhee. In reply to the usual 'give Psych a chance there is no shame in mental illness' argument. [ATTACH]
    Post by: Moosie, Nov 27, 2017 in forum: General ME/CFS news
  17. Moosie
    Post

    Forward ME Group Minutes – 17th October 2017

    I’m confused (whats new?). They had a meeting on the 17th October and another on the 31st October? The link above says their next meeting is on...
    Post by: Moosie, Nov 23, 2017 in forum: General ME/CFS news
  18. Moosie
    Post

    Transcript of Professor Julia Newton's ‘Standing up for fatigue’ talk at the 'Understanding the neurobiology of fatigue' conference Nov 2017

    Thank you to Russell Fleming who did the transcript on behalf of the MEA.
    Post by: Moosie, Nov 18, 2017 in forum: General ME/CFS news
  19. Moosie
    Post

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Thank you @Sly Saint ! Great quotes. No. 2 (ahem) made me laugh out loud which wasn't something I imagined I would be doing reading this thread....
    Post by: Moosie, Nov 3, 2017 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. Moosie
    Post

    Petition for increased research funding in the UK

    Signed
    Post by: Moosie, Nov 2, 2017 in forum: Petitions
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