Massachussetts Congressional Delegation made statement at Boston showing of Unrest film

I just saw this from ME Action on twitter (@MEActNet):

Code:

https://twitter.com/MEActNet/status/930222000966176768

https://twitter.com/user/status/930222000966176768

The statement is in an image attached to the tweet so it may be hard to read by some. Here's the text from the image:

"Without meaningful and immediate investments in biomedical research, the 28,000 people living with ME/CFS in Massachusetts will struggle to find answers to critical questions about the disease's cause, diagnosis, and treatment. Events like today's, bolstered by the advocacy and outreach performed by many in this room, have helped to bring this devastating condition out of the shadows and into the spotlight. We will keep our constituents with ME/CFS in mind as we push for expanded biomedical research opportunities and funding in the U.S. House and Senate."

Joint statement from the entire Massachusetts Congressional Delegation:

Sen. Elizabeth Warren
Sen. Ed Markey
Rep. Richard Neal
Rep. Jim McGovern
Rep. Nikki Tsongas
Rep. Joe Kennedy
Rep. Katherine Clark
Rep. Seth Moulton
Rep. Michael Capuano
Rep. Stephen Lynch
Rep. Bill Keating

Shared at the UNREST film event, Regent Theatre, Boston area on November 12, 2017​

 

They have really done some great work. The list of co-sponsors was incredible. The screening was a wonderful event. I traveled from Vermont to attend. It was a long drive and I am crashing today but I am glad I went.

https://twitter.com/user/status/930086783823568896

 

The panel discussion is now available on YouTube. You can share with your networks using this facebook post.

 

Merged thread

Impressive! But hard to read on FB because it's a wall of text, so with apologies to the OP, here's the whole thing, broken up (and not in quotes, which would make it too small to read):

Please watch and share this new video and wonderful success summary by Rivka Solomon from the Boston area Unrest event! Congratulations to the organizers on a a successful event and outreach effort! #TimeforUnrest#MEAction

"BOSTON AREA UNREST EVENT: SUCCESSES AND VIDEO

We are still riding high on the successes from our Regent Theatre (Boston area) Unrest event held on November 12th. We now want to share with you the event successes and the Youtube video link, which includes the event opening, panel discussion and audience Q&A.

First, the event successes!

- Packed house: This was the largest “community-organized” screening of Unrest held to date. An impressive 358 attended, many health care professionals from noted Boston healthcare facilities.

- Elected officials’ support: The joint statement of support from the entire Massachusetts Congressional Delegation, read aloud at the event, can serve as a role model for other states to follow. (See the youtube video for the joint statement.)

- 19 co-sponsoring organizations: Government, healthcare, academic, disability, ME/CFS, religious, arts, and women’s organizations co-sponsored our event. They included the MA Department of Public Health and the Division of Women’s Health at Brigham and Women’s Hospital. We believe this was the most diversely-sponsored ME/CFS event ever held.

- WBUR (Boston's NPR station): A WBUR senior correspondent/host moderated our event panel. This added legitimacy and credibility to our efforts.

- Media attention: We were in a Boston Globe West column, the Arlington Advocate and Ms.magazine.com.

- Outreach: WBUR included our event in their newsletter sent to 72,000 people. Boston hospitals, med schools and a large pharma organization did the same, reaching well over 55,000 people via newsletter or website.

- Video of the event: The event opening, panel discussion and audience Q&A is now online to share with others. We will now try to get it aired on cable TV stations around New England and the whole U.S. YouTube:https://www.youtube.com/watch?v=48cCuJkFXzw&feature=youtu.be

GET INVOLVED: Contact me if you want to see the pitch email you can use to ask your local station to air the video too.

Time for Unrest The #MEAction Network Massachusetts CFIDS / ME & FM Association"​

Original here.

Here's the video:

https://www.youtube.com/watch?v=48cCuJkFXzw

 

This post refers to the post above

The original post in this thread has a link to an article in Ms.magazine.com. It didn't work for me. I found a reference to Unrest on that site here :

http://msmagazine.com/blog/2017/11/07/a-woman-who-dared-chronic-fatigue-syndrome/

 

Thanks @Sasha for the text version. I am learning my way how to best share on this format. I appreciated your help.