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Recent Activity
Activity stream for all registered members at Science for ME.
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Dolphin liked Mike Harley's post in the thread Mike's EU Marathons.
Another interview in from Serbia. So similar to everywhere else in Europe. In many ways worse as ME is not even recognised as an...
Apr 24, 2024 at 12:26 PM -
Midnattsol liked Trish's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.
I don't think it's about psychologists and rehabilitationists being bad people, or not caring, or being particularly more arrogant than...
Apr 24, 2024 at 12:26 PM -
Midnattsol liked Turtle's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.
The problem with psychologists starts with local doctors and specialists sticking to what they have learned; ME/CFS is a 'between the...
Apr 24, 2024 at 12:25 PM -
Midnattsol liked JellyBabyKid's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.
This is the bit I really have a problem with. I do a LOT to learn about my issues, whatever they might be, and do the best I can to...
Apr 24, 2024 at 12:25 PM -
Midnattsol liked JellyBabyKid's post in the thread Why are psychologists and rehabilitationists so unaware that their research, questionnaires and treatment can cause harm?.
This too. We are far better informed then the so called specialists. A little humility might be helpful here. As Michael J Fox said,...
Apr 24, 2024 at 12:25 PM -
Aaron liked JellyBabyKid's post in the thread Help writing an email template to send the NIHR (coinciding with local billboards)?.
Hi @Aaron Love the idea of these billboards! I might be able to help you with a template email. Feel free to message me directly and...
Apr 24, 2024 at 12:18 PM -
Trish liked Jonathan Edwards's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yeah and who does the reviewing of the reviewing of the reviewing? The circular nature of the problem is something budding researchers...
Apr 24, 2024 at 12:16 PM -
Starlight liked Binkie4's post in the thread Severe difficulties with eating in ME/CFS.
Interesting letter, worth reproducing in full. Thank you @MrMagoo Rapid response to: We need better care for long covid and ME/CFS...
Apr 24, 2024 at 12:14 PM -
Starlight liked MrMagoo's post in the thread Severe difficulties with eating in ME/CFS.
Thanks - I never know how to do that with the text, I managed it once then forgot!
Apr 24, 2024 at 12:13 PM -
FMMM1 replied to the thread Reactivating European Network on ME/CFS (EUROMENE) - purpose?.
[EDITED] Posted these i.e. on Twitter/X - I'm wondering who would actually set the agenda i.e. what EUROMENE II would actually do! Also,...
Apr 24, 2024 at 12:13 PM -
Starlight liked Sean's post in the thread Severe difficulties with eating in ME/CFS.
Hundreds of others go without access to basic medical care or screening services because they are too unwell to travel and there are no...
Apr 24, 2024 at 12:13 PM
