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Special screening of Unrest for MPs and honoured guests - oct 24

Discussion in 'General ME/CFS news' started by Cheshire, Oct 23, 2017.

  1. Trish

    Trish Moderator Staff Member

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    Location:
    UK
    @Jonathan Edwards can you tell us how the Q and A session after the film went? Did you get the impression there were MP's interested enough to follow this up with any kind of action?
     
    brf, Hutan, Valentijn and 2 others like this.
  2. Barry

    Barry Senior Member (Voting Rights)

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    8,385
    I could try to pretend there is something deep and mysterious about it, but no. I had a very fraught evening sorting out the avatars bit of the user manual, mistakes compounding mistakes, and I was using my own avatar setting to grab screen shots of. Going through photos, and one I picked seemed interesting - tree roots growing on side of a bank on Dartmoor, but then realised it was much too dark and brooding to put on a help section for PwME. So I went for something more pleasing, and for the moment that's my avatar. It may change in dues course :). "Laking it ... ", "pond-ering" - we really do need a groany smily :p:D.
     
  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    MPs did not contribute to the discussion directly as far as I know. The MPs present looked as if they were already interested in advocating for more research for ME but I do not think any specific opportunities were identified. I don't think anyone was expecting that.
     
  4. TiredSam

    TiredSam Committee Member

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    I tell my students that the traditional response to a pun is a groan. Nice to hear that it still is.
     
    Luther Blissett, Barry, Jan and 3 others like this.
  5. chrisb

    chrisb Senior Member (Voting Rights)

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    No need to be like that. They were nobbut laikin'.
     
  6. brf

    brf Established Member (Voting Rights)

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    @Jonathan Edwards

    Was there any specific feedback from the MPs?
    We're planning a screening for Parliamentarians in Canada and that kind of info might be helpful.

    Thanks.
     
    Andy, Wonko, Jan and 1 other person like this.
  7. Sasha

    Sasha Senior Member (Voting Rights)

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  8. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    There was no slot for any feedback. I think that was right. Lady Mar and Charles and Jen and Jessica put their story to the representatives of the people. It would have been crass to ask for a response. I think everyone was grateful that MPs came and sat right through and several made it clear they were supportive. It was a way to build and cement friendships. MPs after all are not the legislature. They are there to be our advocates when the legislature chooses to act. I think it is good that this process is kept separate from lobbying government as such. That has been done as well, but the rules of engagement are different.
     
    Solstice, adreno, Hutan and 11 others like this.
  9. brf

    brf Established Member (Voting Rights)

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    @Perrier

    Yes, we sure will. Unrest has been shown in several Canadian cities already.

    Were you aware of the Canadian campaigns currently going on?

    "Open Letter to the Minister of Health"
    "Meet your MP about ME"

    You'll find both on our website or facebook pages.
     
    Valentijn, Perrier and Andy like this.
  10. Sasha

    Sasha Senior Member (Voting Rights)

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    brf, Valentijn, Perrier and 1 other person like this.
  11. brf

    brf Established Member (Voting Rights)

    Messages:
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    Location:
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    @Jonathan Edwards

    Quite right.
    I was thinking more in terms of venue or how open or receptive they were, but you've mentioned here they were very supportive.

    Thanks!
     
    Perrier, Andy, Wonko and 1 other person like this.
  12. brf

    brf Established Member (Voting Rights)

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    Perrier, Andy and Sasha like this.
  13. Sasha

    Sasha Senior Member (Voting Rights)

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    @Jonathan Edwards said on that other thread that Charles Shepherd would be a good person to ask for advice (the medical adviser for the UK's ME Association).
     
  14. brf

    brf Established Member (Voting Rights)

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    Hey @Sasha

    We're speaking with UK people this week and I'll make sure Charles Shepherd is on the list to contact.

    Thanks so much. :heart:
     
  15. Adrian

    Adrian Administrator Staff Member

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    6,479
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    There were some positive tweets from a few MPs
     
    Jan, Valentijn, Perrier and 3 others like this.
  16. brf

    brf Established Member (Voting Rights)

    Messages:
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    Location:
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    Thanks @Adrian

    I'll have to go mining for them.
     
    Perrier and Andy like this.
  17. brf

    brf Established Member (Voting Rights)

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    Location:
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    A couple of kind souls on a FB group posted some tweets for me which I've reposted on our FB site but am having difficulty linking to here for some reason.

    It's encouraging to see so many MPs talk about about the impact the film had on them.
     
    Wonko likes this.
  18. Sasha

    Sasha Senior Member (Voting Rights)

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    I read that they just saw 20 minutes of it (so not a preview, a section).
     
  19. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    They saw about the first 20 minutes - some of the best material.
     
    ukxmrv, Luther Blissett, Jan and 3 others like this.
  20. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    4,675
    What Did the Parliamentary Unrest Event Achieve?
    sarah reed

    http://www.meaction.net/2017/11/01/what-did-the-parliamentary-unrest-event-achieve/
     
    Jan, Trish, Scarecrow and 2 others like this.

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