1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Tymes Trust - No reported harassment of staff at Bristol University

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Liv aka Mrs Sowester, Oct 29, 2017.

  1. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    Agreed, talk is cheap, if someone makes an outrageous claim its up to them to supply the proof.
     
    MEMarge, Moosie, Jan and 9 others like this.
  2. Adrian

    Adrian Administrator Staff Member

    Messages:
    6,486
    Location:
    UK
    I wouldn't be surprised if she got angry letters from parents of her patients (I was tempted but didn't - I did tell a social worker as a passing comment that I thought she represented a danger to children by pushing GET and activity based therapy). But given the child protection issues are comment when dealing with children with ME I think quite a lot of parents are very careful and do their best to manage doctors.
     
    Inara, Atle, MEMarge and 14 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Yes, and she seems to really believe it. Not helped by the fact that she has been supported by AYME and AfME.

    In her inaugural speech (Feb 24th 2017)
    https://www.dropbox.com/s/lc9kmqbxcsuiilg/Esther Crawley inaguaral compressed.mp3?dl=0
    she says she Gets given flowers from AYME on behalf of every single child she's treated in clinic and done research for.

    Don't know if AfME are keeping up the practice:emoji_bouquet:
     
    Last edited: Nov 8, 2017
    Inara, EzzieD, Valentijn and 5 others like this.
  4. Woolie

    Woolie Senior Member

    Messages:
    2,918
    Pass the sickbag....
    vomit small.gif
     
    Inara, MEMarge, Hutan and 10 others like this.
  5. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    Eeuww ... bagsy me first!
     
    Woolie, Jan and ladycatlover like this.
  6. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,274
    Location:
    Norway
    Merged thread

    UK Columns News - about false harassment accusations by ME-patients


    About Tymes Trust's FOI-request revealing Wesseley and Crawley with false claims of harassment by ME-patients.

    From 37.30 - 39.33

    https://www.youtube.com/watch?v=yLwKE03Lu7E


     
    Last edited by a moderator: Sep 11, 2023
    ahimsa, Woolie, Simone and 19 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Love the derogatory way they talk about Wessely.

    Interesting bit around 25 mins in about
    "social model of understanding disability has given way to an extreme behaviouralist approach that is both inappropriate and life threatening";

    There is a letter up on screen will try and screen shot it later to read.

    The presenter believes that the change in attitude towards sick and disabled people is by design and says they will be covering the issue in more detail.

    This publication/channel could be a useful ally.
     
    ahimsa, Woolie, Simone and 14 others like this.
  8. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,779
    Location:
    UK
  9. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,274
    Location:
    Norway
    And also Crawley as "vocal"
    Haven't we heard that very same description before? Are the tables turning? :D
     
    Simone, Jan, Invisible Woman and 5 others like this.
  10. Sean

    Sean Moderator Staff Member

    Messages:
    7,155
    Location:
    Australia
    Correct. It is not an unintended consequence, it is the aim.

    It is a deliberate cull.

    Good. :thumbup:
     
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    I thought quite a while ago that the best way to turn things around was to not only expose their wrong-doing but to ridicule them. This seems to be catching on. It is after all what they have been doing to ME patients for decades.
     
    Simone, Jan, Invisible Woman and 9 others like this.
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Jan, Joel, Invisible Woman and 7 others like this.
  13. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    4,675
  14. EzzieD

    EzzieD Senior Member (Voting Rights)

    Messages:
    542
    Location:
    UK
    Oh, this video clip is wonderful! So pleased to see tables deservedly turning at long last and ridicule being given where it's due. Hoping that more news outlets will follow suit.
     
    Jan, MeSci, Invisible Woman and 5 others like this.
  15. Trish

    Trish Moderator Staff Member

    Messages:
    52,217
    Location:
    UK
    It's had 626 views so far on You Tube. So not exactly mainstream, but every little helps. Seems to be run by volunteers who started because of a local political problem in Plymouth. Now they are taking on the whole UK!
     
    Last edited: Nov 12, 2017
    Jan, Invisible Woman, MeSci and 9 others like this.
  16. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Good to have different people speaking about these issues.
     
    Jan, EzzieD, Wonko and 2 others like this.
  17. Joel

    Joel Senior Member (Voting Rights)

    Messages:
    941
    Location:
    UK
    I like that, I think we can all relate our ME experience to the one that started their group. We ought to pass them more information, establish a relationship.
     
    Simone, Jan, EzzieD and 4 others like this.
  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    I emailed them
     
    Simone, Jan, EzzieD and 6 others like this.
  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    Got a reply:
     
    Last edited: Nov 22, 2017
    Moosie, ahimsa, TiredSam and 19 others like this.
  20. Andy

    Andy Committee Member

    Messages:
    21,911
    Location:
    Hampshire, UK
    Shared their video and tagged them in the post on Facebook


    Also saw Tymes Trust has shared the video as well.
     
    Moosie, ahimsa, TiredSam and 12 others like this.

Share This Page