Unrest Viewings

The Norwegian ME Association - Rogaland County - is hosting 2 screenings of Unrest in Stavanger november 16th.

A cinema auditorium is booked with 160 seats. The plan is to fill it twice in one evening.

Professor Kristian Sommerfelt (Haukeland university hospital) will come to answer questions and provide additional information about ME. He is a paediatrician and neurologist with over 25 years of experience on ME. He was in the panel to Unrest's Europe-premiere at the film festival CPHDOX in Copenhagen.

Free for members of the ME Association, health care personell and politicians
(for others: 100 NOK)
Tickets/registration
Facebookevent

 

Anyone know who the patients on the panel are? Was about to sign up but already full according to afme.

 

It's Jo Daniels, who has been doing poor CFS stuff for years.

I wonder who organised this, surely even Action for ME wouldn't choose to have her speaking (I really shouldn't assume that... AfME consistently astound me)?

 

That's an interesting twist. But then I noticed that AfME were partners of some sort (sorry already can't remember specifics) on the Unrest site. Holgate & Chowdhury trying to shine up their image in the ME community. I'm inclined to not be in a great hurry to be forgiving of people who have been so willing to ignore PwME in order to have status with the establishment.

They may have thought that they were even doing right but the tide of opinion now is such that it's easy to side with patients since that same tide is swelling and knocking the BPS off it's feet.

Things will be as they will be and these two may be absorbed into the flow of people who are taking note (who previously knew nothing) and create a narrative that they were the good guys all along. But I think there are people (other than me) who will know different going forward.

I hope someone can report back on the overall response and to the panel afterward and that SC & SH will do right by our community where they've failed previously. For me that means NO waffling. NO weasel words that can be interpreted with ambiguity or comments that sound good but are hollow of meaning.

 

I've totally given up on Sonya and Holgate doing the right thing. They have a clear responsibility to speak out against PACE, the way results were spun, and the way critics were smeared. I don't think that there's much chance of them doing that.

 

Unrest is on the first place in Norwegian iTunes over most sold documentaries

 

Is there any record of the panel discussion?

 

Sounds like it should go up here at some point: https://www.royalfree.nhs.uk/about-us/become-a-trust-member/medicine-for-members/

 

Maybe they're in the midst of picking apart Crawley's quackery...

seems unlikely Action for ME would let them speak then though.

 

Unrest film is collaborating with the CDC to offer a free showing of the film in Atlanta, Georgia. And this will count as continuing education for medical professionals. This seems like a big deal, I think?

Tweet from @unrestfilm:

Code:

https://twitter.com/unrestfilm/status/930197780269645824

https://twitter.com/user/status/930197780269645824

Link to the CDC website with more information:

https://www.cdc.gov/me-cfs/healthcare-providers/hidden-crisis.html

[ PS. There's a lot of cut/paste in this post so please let me know if I got something wrong! Especially since I'm going to add this event to the calendar. Thanks ]

 

This year has gone so quickly for me. We're already in November?! I wasn't expecting the AfME AGM for ages.

Oh - seems there's a video here: