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Advocacy Projects and Campaigns

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  1. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    8,730
    Art Vandelay
    Feb 16, 2024
  2. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 9 10 11
    Replies:
    200
    Views:
    11,889
    Andy
    Apr 22, 2024 at 10:26 AM
  3. ahimsa

    UK: Campaign called #MPDoYourJobForME

    ahimsa, Mar 22, 2023
    Replies:
    0
    Views:
    959
    ahimsa
    Mar 22, 2023
  4. Sly Saint

    Bing ME/CFS information

    Sly Saint, Oct 18, 2022
    Replies:
    0
    Views:
    663
    Sly Saint
    Oct 18, 2022
  5. bobbler

    marketing I like for women's sport - could this sort of thing work for ME?

    bobbler, Aug 4, 2022
    Replies:
    0
    Views:
    777
    bobbler
    Aug 4, 2022
  6. Sly Saint

    Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)

    Sly Saint, Jul 2, 2022
    Replies:
    0
    Views:
    697
    Sly Saint
    Jul 2, 2022
  7. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    675
    Sly Saint
    May 28, 2022
  8. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    Phoebe, May 20, 2022
    Replies:
    0
    Views:
    989
    Phoebe
    May 20, 2022
  9. Andy

    Presentation: 'Shame, stigma and the shadows of contested, ‘unexplained’ illness', Katherine Cheston, Thurs 22nd April, 14.30-16.00 UK

    Andy, Apr 19, 2021
    Replies:
    0
    Views:
    781
    Andy
    Apr 19, 2021
  10. Andy

    Action for ME: UK-wide self-advocacy online workshop, Wednesday 10 March from 2 - 4pm.

    Andy, Feb 11, 2021
    Replies:
    0
    Views:
    856
    Andy
    Feb 11, 2021
  11. Andy

    Solve ME/CFS Initiative: FINDING RESOURCES AND CREATING OPPORTUNITY: 2020 ME/CFS FEDERAL ADVOCACY REPORT

    Andy, Jan 15, 2021
    Replies:
    0
    Views:
    859
    Andy
    Jan 15, 2021
  12. Andy

    Chronic Illness Inclusion Project: Remote access and participation survey

    Andy, Jun 11, 2020
    Replies:
    0
    Views:
    768
    Andy
    Jun 11, 2020
  13. ahimsa

    USA: Register now for ME/CFS Advocacy Week and DC Lobby Day 2020

    ahimsa, Jan 17, 2020
    Replies:
    0
    Views:
    950
    ahimsa
    Jan 17, 2020
  14. ahimsa

    MEAction: NIH Receives Surprise Holiday Gift from ME Community

    ahimsa, Jan 11, 2020
    Replies:
    0
    Views:
    1,268
    ahimsa
    Jan 11, 2020
  15. Sly Saint

    Ireland - Positive Preliminary Meeting with Minister re Future of Care for M.E. Dec 2019

    Sly Saint, Dec 18, 2019
    Replies:
    0
    Views:
    996
    Sly Saint
    Dec 18, 2019
  16. Andy

    The ME Global Chronicle, June 2019

    Andy, Jun 27, 2019
    Replies:
    0
    Views:
    1,114
    Andy
    Jun 27, 2019
  17. Andy

    The ME Global Chronicle, April 2019

    Andy, Apr 1, 2019
    Replies:
    0
    Views:
    1,142
    Andy
    Apr 1, 2019
  18. Mike Harley

    ME in Latvia

    Mike Harley, Mar 31, 2019
    Replies:
    0
    Views:
    905
    Mike Harley
    Mar 31, 2019
  19. It's M.E. Linda

    ME Debate Jan2019 - UK ONLY -Steve Brine MP

    It's M.E. Linda, Mar 24, 2019
    Replies:
    0
    Views:
    1,006
    It's M.E. Linda
    Mar 24, 2019
  20. Andy

    Are You a Young Person Affected by ME? How do you Visualize Health Equity? Join a National Contest

    Andy, Jan 12, 2019
    Replies:
    0
    Views:
    1,053
    Andy
    Jan 12, 2019
  21. Andy

    Blog: Occupy ME: "NIH’s Obstacle Course to Success for ME/CFS Researchers"

    Andy, Dec 3, 2018
    Replies:
    0
    Views:
    1,088
    Andy
    Dec 3, 2018
  22. Andy

    Chronic Illness Inclusion Project November Newsletter

    Andy, Dec 3, 2018
    Replies:
    0
    Views:
    764
    Andy
    Dec 3, 2018
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