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General Advocacy Discussions

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  1. Adam pwme

    New Video: NICE pause ME/CFS guideline

    Adam pwme, Oct 18, 2021
    Replies:
    13
    Views:
    1,511
    Adam pwme
    Oct 19, 2021
  2. ME/CFS Skeptic

    Overview of NIH grants for ME/CFS research

    ME/CFS Skeptic, Sep 3, 2020
    Replies:
    13
    Views:
    1,424
    ME/CFS Skeptic
    Jul 27, 2021
  3. InfiniteRubix

    MECFS Patient Researcher Accolade Portfolio

    InfiniteRubix, Jul 28, 2020
    Replies:
    13
    Views:
    1,415
    InfiniteRubix
    Nov 5, 2020
  4. Cinders66

    Department of health quoting £3.5m investment in CFS/ME to look at new approaches to treatment - misleads public

    Cinders66, May 10, 2018
    Replies:
    13
    Views:
    1,911
    Sly Saint
    May 11, 2018
  5. V.R.T.

    Collecting testimonies from people whose ME worsened from following psychosomatic advice

    V.R.T., May 26, 2023
    Replies:
    12
    Views:
    1,141
    Midnattsol
    May 30, 2023
  6. Simone

    Etiology: graphic representations

    Simone, May 20, 2020
    Replies:
    12
    Views:
    1,234
    Simone
    May 21, 2020
  7. NelliePledge

    The Steph show channel 4 U.K.

    NelliePledge, Mar 29, 2020
    Replies:
    12
    Views:
    1,965
    MEMarge
    Mar 31, 2020
  8. ME/CFS Skeptic

    ME Association staffing and structure

    ME/CFS Skeptic, Mar 20, 2019
    Replies:
    12
    Views:
    1,975
    Dx Revision Watch
    Feb 7, 2020
  9. NelliePledge

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    NelliePledge, Jun 26, 2019
    Replies:
    12
    Views:
    1,706
    Amw66
    Jun 28, 2019
  10. Esther12

    Over 100,000 posts on S4ME already

    Esther12, Sep 8, 2018
    Replies:
    12
    Views:
    1,833
    Adrian
    Sep 10, 2018
  11. Keela Too

    Trust in the Context of ME. My #MayAwareness blog post

    Keela Too, May 11, 2018
    Replies:
    12
    Views:
    1,971
    Inara
    May 13, 2018
  12. bobbler

    Masking and performing or 'management strategies' in ME/CFS (and being in positions where required or led to do so)

    bobbler, Mar 11, 2023
    Replies:
    11
    Views:
    1,307
    bobbler
    Nov 20, 2023
  13. Cinders66

    UK advocacy, campaigning what’s happening?

    Cinders66, Aug 29, 2019
    Replies:
    11
    Views:
    1,807
    Amy101
    Sep 5, 2019
  14. daftasabrush

    The actual views of "ME activists" are...

    daftasabrush, Mar 27, 2019
    Replies:
    11
    Views:
    1,502
    daftasabrush
    Apr 16, 2019
  15. Sly Saint

    Australia - Adam Bandt MP

    Sly Saint, Sep 21, 2018
    Replies:
    11
    Views:
    2,097
    Sly Saint
    Dec 7, 2018
  16. Adam pwme

    New video: PEM (2 mins)

    Adam pwme, May 1, 2023
    Replies:
    10
    Views:
    1,327
    Adam pwme
    May 2, 2023
  17. FMMM1

    Linking up with the Long covid community

    FMMM1, Jul 25, 2021
    Replies:
    10
    Views:
    1,292
    Simbindi
    Aug 20, 2021
  18. Estherbot

    ACT UP documentary, United in Anger, 2012

    Estherbot, Apr 17, 2019
    Replies:
    10
    Views:
    1,643
    Snowdrop
    Apr 19, 2019
  19. ME/CFS Skeptic

    ME/CFS advocacy successes in Germany

    ME/CFS Skeptic, May 20, 2023
    Replies:
    9
    Views:
    1,114
    tmrw
    May 22, 2023
  20. ME/CFS Skeptic

    Fatigatio digital symposium in Hannover, 19 September 2020

    ME/CFS Skeptic, Aug 25, 2020
    Replies:
    9
    Views:
    1,767
    Ravn
    Dec 26, 2020
Showing threads 81 to 100 of 203

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