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General Advocacy Discussions

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  1. JaimeS

    Who was it that said being in support groups leads to poor outcome?

    JaimeS, Jul 24, 2018 ... 12 13 14
    Replies:
    274
    Views:
    26,915
    Arvo
    Nov 27, 2022
  2. Esther12

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Esther12, Jul 28, 2019 ... 7 8 9
    Replies:
    179
    Views:
    20,690
    Amw66
    Sep 10, 2019
  3. ME/CFS Skeptic

    A proposal for ME Action: a commitment to evidence-based medicine

    ME/CFS Skeptic, Oct 2, 2019 ... 6 7 8
    Replies:
    154
    Views:
    15,831
    Trish
    Nov 6, 2020
  4. Trish

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    Trish, Mar 12, 2019 ... 5 6 7
    Replies:
    132
    Views:
    14,699
    Esther12
    Jul 31, 2022
  5. Rossy191276

    Ideas For Marketing ME More Effectively...

    Rossy191276, May 14, 2018 ... 5 6 7
    Replies:
    125
    Views:
    14,368
    Dragonflies and dreams
    Aug 13, 2018
  6. RuthT

    #MEAction - UK Organiser

    RuthT, May 23, 2018 ... 4 5 6
    Replies:
    100
    Views:
    12,462
    Andy
    Oct 3, 2018
  7. Hip

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    Hip, Sep 10, 2018 ... 4 5 6
    Replies:
    110
    Views:
    11,032
    Hutan
    Oct 13, 2018
  8. Sly Saint

    Why are the majority of pwME rarely mentioned?

    Sly Saint, Jan 18, 2019 ... 2 3
    Replies:
    52
    Views:
    9,995
    Sly Saint
    Aug 3, 2023
  9. JohnTheJack

    What research do you want to see?

    JohnTheJack, Jul 7, 2018 ... 4 5 6
    Replies:
    107
    Views:
    9,670
    duncan
    Apr 14, 2024 at 11:09 AM
  10. Sarah94

    ME Association magazine summer 2019

    Sarah94, Aug 12, 2019 ... 2 3 4
    Replies:
    65
    Views:
    8,135
    dratalanta
    Aug 21, 2019
  11. Cinders66

    AFME decide Geneva is where their #millionsmissing contribution should be

    Cinders66, Apr 10, 2018 ... 2 3
    Replies:
    41
    Views:
    7,205
    Cinders66
    May 13, 2018
  12. Obermann

    Twitter activity of Professor Blanchflower

    Obermann, Feb 11, 2019 ... 2 3
    Replies:
    52
    Views:
    7,097
    chrisb
    Feb 25, 2019
  13. Simon M

    Published poems by Veronica Ashenhurst, who has Severe ME

    Simon M, Oct 4, 2021 ... 2 3
    Replies:
    40
    Views:
    6,745
    Simon M
    Jan 9, 2024
  14. Rossy191276

    Interview with Howard Bloom Where He Talks Extensively About Severe ME Viewed Over 500000 Times in 1st Day

    Rossy191276, May 23, 2018 ... 2
    Replies:
    29
    Views:
    6,258
    Sly Saint
    Aug 25, 2018
  15. ME/CFS Skeptic

    Why is ME/CFS getting so little research funding?

    ME/CFS Skeptic, Nov 24, 2020 ... 2 3 4
    Replies:
    72
    Views:
    6,050
    chrisb
    Nov 30, 2020
  16. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    57
    Views:
    5,891
    bobbler
    Nov 11, 2023
  17. Dolphin

    Fundraising for ME/CFS research - opportunities, problems

    Dolphin, Aug 14, 2019 ... 2 3 4
    Replies:
    75
    Views:
    5,829
    Dolphin
    Sep 6, 2023
  18. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    5,531
    AknaMontes
    Jul 11, 2023
  19. freddyV

    Harassment claims in the media and social media.

    freddyV, Aug 25, 2021 ... 2 3
    Replies:
    53
    Views:
    5,424
    Lou B Lou
    Feb 26, 2023
  20. Obermann

    Sci-hub blocked in Sweden

    Obermann, Jul 6, 2019 ... 2
    Replies:
    25
    Views:
    5,170
    Webdog
    Jul 11, 2019
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