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Advocacy Projects and Campaigns

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  1. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    8,649
    Art Vandelay
    Feb 16, 2024
  2. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 8 9 10
    Replies:
    197
    Views:
    11,719
    Andy
    Apr 15, 2024 at 12:53 PM
  3. ahimsa

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    ahimsa, Apr 9, 2024
    Replies:
    4
    Views:
    234
    ahimsa
    Apr 10, 2024
  4. yannlk

    Improving Google’s Abysmal “CFS” pop-up

    yannlk, Feb 3, 2024
    Replies:
    7
    Views:
    554
    CRG
    Feb 4, 2024
  5. EndME

    Chronically Ignored - Investigative Documentary

    EndME, Jan 24, 2024
    Replies:
    2
    Views:
    570
    Dolphin
    Jan 28, 2024
  6. Amw66

    MEAction Scotland - Stakeholder review of NICE 2021 ME/CFS Guideline to prepare for Scottish implementation - deadline 1 March 2022

    Amw66, Feb 23, 2022
    Replies:
    1
    Views:
    602
    Amw66
    Mar 7, 2022
  7. jonathan_h

    ALS Untangled: an organisation worth emulating?

    jonathan_h, Jan 26, 2024
    Replies:
    6
    Views:
    606
    Ravn
    Jan 28, 2024
  8. Sly Saint

    Bing ME/CFS information

    Sly Saint, Oct 18, 2022
    Replies:
    0
    Views:
    660
    Sly Saint
    Oct 18, 2022
  9. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    669
    Sly Saint
    May 28, 2022
  10. Sly Saint

    Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)

    Sly Saint, Jul 2, 2022
    Replies:
    0
    Views:
    691
    Sly Saint
    Jul 2, 2022
  11. ahimsa

    International: March 15 is Long Covid Awareness Day - news coverage, social media posts, protests

    ahimsa, Mar 16, 2024
    Replies:
    18
    Views:
    695
    ahimsa
    Mar 23, 2024
  12. Tara Green

    New Light Aware Card

    Tara Green, Aug 26, 2021
    Replies:
    3
    Views:
    725
    MeSci
    Aug 27, 2021
  13. Andy

    Webinar: Solve ME: COVID Long Haulers and the ME/CFS Community: Joining Forces for Progress, Thurs, Dec 10th, 2020, 10 am PT / 1 pm ET / 6pm GMT

    Andy, Nov 28, 2020
    Replies:
    1
    Views:
    734
    Andy
    Dec 2, 2020
  14. Andy

    UK ME Action campaign against NICE guidelines

    Andy, Aug 27, 2019
    Replies:
    1
    Views:
    737
    Andy
    Aug 29, 2019
  15. Jaybee00

    Expert source list for journalists on Long COVID. Compiled by Fiona Lowenstein and Betsy Ladyzhets

    Jaybee00, Nov 5, 2021
    Replies:
    1
    Views:
    745
    Jaybee00
    Jan 17, 2022
  16. Andy

    Chronic Illness Inclusion Project: Remote access and participation survey

    Andy, Jun 11, 2020
    Replies:
    0
    Views:
    763
    Andy
    Jun 11, 2020
  17. Andy

    Chronic Illness Inclusion Project November Newsletter

    Andy, Dec 3, 2018
    Replies:
    0
    Views:
    764
    Andy
    Dec 3, 2018
  18. bobbler

    marketing I like for women's sport - could this sort of thing work for ME?

    bobbler, Aug 4, 2022
    Replies:
    0
    Views:
    773
    bobbler
    Aug 4, 2022
  19. Andy

    Presentation: 'Shame, stigma and the shadows of contested, ‘unexplained’ illness', Katherine Cheston, Thurs 22nd April, 14.30-16.00 UK

    Andy, Apr 19, 2021
    Replies:
    0
    Views:
    777
    Andy
    Apr 19, 2021
  20. Andy

    Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022

    Andy, May 10, 2022
    Replies:
    1
    Views:
    779
    Arnie Pye
    May 10, 2022
  21. Andy

    Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes 19th April 2022

    Andy, Mar 8, 2022
    Replies:
    2
    Views:
    792
    Dolphin
    Oct 5, 2022
  22. Andy

    The Neurological Alliance survey: Life with a neurological condition during COVID-19 [Closes 20th June 2020]

    Andy, Jun 8, 2020
    Replies:
    1
    Views:
    815
    ukxmrv
    Jun 9, 2020
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